An NGO gives adult cancer patients in Lebanon a vital lifeline

Thousands of skilled Lebanese workers, notably medical professionals, have left the country and the health sector is on the brink of collapse. (AFP)
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Updated 06 November 2021
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An NGO gives adult cancer patients in Lebanon a vital lifeline

  • Cancer patients face “astronomical” costs and difficulty securing medication amid the country’s grinding financial crisis
  • Established in 2018, the Cancer Support Fund provides support to adult patients who cannot afford treatment

DUBAI: Living conditions in Lebanon have deteriorated steadily since mid-2019 when the country began experiencing severe economic and financial problems, which have since been exacerbated by the COVID-19 pandemic and the 2020 Beirut port blast.

The meltdown has led to shortages of essential commodities, including fuel, and resulted in an unprecedented power crisis. Consequently, thousands of skilled Lebanese workers, notably medical professionals, have left the country and the health sector is on the brink of collapse.

Under the circumstances, Lebanon’s cancer patients are facing an uphill struggle to access even the most basic medicines and treatments, frequently having to take whatever medication is readily available regardless of the side effects.




Cancer Support Fund was launched to specifically support Lebanon’s underprivileged adult cancer patients. (AFP)

Enter the Cancer Support Fund. Established in 2018 at the American University of Beirut Medical Center, it has given many a Lebanese in dire straits a timely and vital lifeline.

Hala Dahdah Abou Jaber, CSF’s founder and president, told Arab News the NGO was launched to specifically support Lebanon’s underprivileged adult cancer patients.

Despite the many cancer-related NGOs operating in the country, Abou Jaber says the adult demographic is often underserved, as the majority of charities are targeted at children.

“There was a necessity and an urge to help adult cancer patients, and when we say an adult, it could be a young boy who is 18 or 19, a mother who is 25 or 30, a father who is 50 years old, or simply an 80-year-old woman who also deserves a chance to live,” she said.

The extreme hardship endured by Dina Itani is a case in point. The South Lebanon resident chokes back tears as she recounts how the overlapping crises buffeting her country have disrupted her cancer treatment

On top of fighting the disease, she and her family must also contend with chronic shortages of vital medication.

A sudden onset of eyesight deterioration about two years ago made Itani realize that something was wrong with her health. When an ophthalmologist could not find anything wrong with her eyes, he requested a brain scan, which detected a tumor.

She underwent surgery to remove the tumor, but a biopsy showed the lump was cancerous. Itani was told she would have to undergo further treatment to prevent the cancer from spreading. “I have melanoma cancer,” Itani told Arab News.

“It’s a type of skin cancer but in my case, it’s appearing in my internal organs. I underwent brain surgery in Beirut. For a year now I have been redoing diagnostic imaging every three months.”

Despite treatment, Itani’s cancer soon spread to the bone in her right arm, forcing her to undergo another surgery to install a metal plate. She was also put on a course of immunotherapy with a drug called Opdivo. “They gave me the injection every 15 days,” she said.

However, the medical subsidies allotted through Lebanon’s social security system were not enough to cover the cost of Opdivo.

According to Drugs.com, an independent medicine information website, the price of the intravenous solution ranges from $1,189 per 4ml to $7,087 per 24ml infusion in the US. Based on Lebanon’s current minimum wage, it would be almost impossible for the average household to cover such a cost.

“The CSF helps us a lot because we can’t bear the cost of this medication,” Itani said. “It’s very expensive, even for those who are financially comfortable.”

The CSF supports its patients by covering the financial costs of treatments, screenings and occasionally even transport.

“The funds received go directly to the AUB account and there is accountability. Everything we receive goes to help a needy patient,” Abou Jaber said.




Lebanon’s cancer patients are facing an uphill struggle to access even the most basic medicines and treatments. (AFP)

The money to cover the needs of patients primarily comes from private donors, international NGOs, pharmaceutical companies, sponsors and contributors, and fundraising events.

“The number of patients supported since the establishment of the fund is 600, with more than 2,000 hospital encounters,” Dr. Ali Taher, the CSF’s co-founder, told Arab News.

The fund has been able to support an average of 70 patient admissions daily at the infusion center for chemotherapy, but Taher added: “We have had some medication shortages both in intravenous and oral forms, and this has affected patient cycles and the number of admissions required.”

According to Taher, delays in treatment can mean the difference between curing a patient of their cancer or their condition becoming terminal.

“Pausing the screening tests as well as the related treatments can definitely jeopardize the outcome,” he said. “You can start seeing advanced tumors with poor outcomes instead of early detected tumors with curable outcomes.

“You may also experience disease progression that can become fatal to a certain extent. The severity of the impact of lack of treatment depends on the case and condition and disease evolution of each patient.”

INNUMBERS

11,589 Lebanon’s new cancer cases in 2020.

6,438 Lebanon’s cancer deaths in 2020.

(Source: WHO, GloboCan)

The CSF has supported 220 patients this year alone, but Taher expects the number to increase owing to the severity of the financial crisis.

While the world’s attention has been focused on the COVID-19 pandemic, cancer has not stopped taking its toll. According to the Global Cancer Observatory, there were 11,589 new cancer cases in Lebanon in 2020.

Pharmacies and hospitals in the country have been running short of even the most basic medications for several months. In August, protesters gathered outside the headquarters of the UN Economic and Social Commission for Western Asia in Beirut to demand global assistance.

Fuel shortages have contributed to the plight of the health sector. In August, the AUB Medical Center released a statement warning that its patients were in imminent danger due to the lack of a dependable energy supply to run its ventilators.


READ MORE 

Lebanon’s health system on life support as economic woes worsen



The steady depletion of foreign-currency reserves has made it difficult for traders to source essential commodities for a country that imports nearly 80 percent of its goods.

“The CSF today is facing two main challenges: Securing the astronomical cost of treatment and securing the impossible-to-find medications on the Lebanese market,” Abou Jaber said.

“We call on the international community to extend a helping hand to us and to our patients and to find viable solutions.”




The CSF supports its patients by covering the financial costs of treatments, screenings and occasionally even transport. (AFP)

In the meantime, cancer patients such as Itani are having to make do with whatever medication they can get their hands on.

Despite the life-saving support provided by the CSF, shortages of Opdivo forced Itani’s doctor to prescribe an alternative drug that was more readily available.

“I am experiencing strong side-effects from those pills,” Itani said of the new medicine. “It’s as if the skin on my hands and face is burnt. I felt much better when I was taking the other medication.”

To prevent her condition from growing any worse, Itani has little choice but to continue taking the medicine and to hope that she can outlast Lebanon’s seemingly incurable ills.


Syria monitor says alleged Assad loyalist ‘executed’ in public

Updated 5 sec ago
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Syria monitor says alleged Assad loyalist ‘executed’ in public

Fighters affiliated with the new authorities executed Mazen Kneneh with a shot to the head in the street

BEIRUT: A Syria monitor said fighters linked to the Islamist-led transitional administration publicly executed a local official on Friday, accusing him of having been an informant under ousted strongman Bashar Assad.
The Britain-based Syrian Observatory for Human Rights said fighters affiliated with the new authorities executed Mazen Kneneh with a shot to the head in the street in the Damascus suburb of Dummar, describing him as “one of the best-known loyalists of the former regime.”


A Syria monitor said fighters linked to the Islamist-led transitional administration publicly executed a local official on Friday, accusing him of having been an informant under ousted strongman Bashar Assad. (AP/File)

Japan congratulates Lebanon on electing new President

Updated 16 min 38 sec ago
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Japan congratulates Lebanon on electing new President

  • The ministry also said that Japan will continue to support Lebanon

TOKYO: The Government of Japan said it congratulates Lebanon on the election of the new President Joseph Aoun on January 9.
A statement by the Foreign Ministry said while Lebanon has been facing difficult situations such as a prolonged economic crisis and the exchange of attacks between Israel and Hezbollah, the election of a new President is an important step toward stability and development of the country.
“Japan once again strongly demands all parties concerned to fully implement the ceasefire agreement between Israel and Lebanon,” the statement added.
The ministry also said that Japan will continue to support Lebanon’s efforts on achieving social and economic stability in the country as well as stability in the Middle East region.


Lebanon PM to visit new Damascus ruler on Saturday

Updated 10 January 2025
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Lebanon PM to visit new Damascus ruler on Saturday

  • Lebanon’s Prime Minister Najib Mikati will on Saturday make his first official trip to neighboring Syria since the fall of president Bashar Assad, his office told AFP

BERUIT: Lebanon’s Prime Minister Najib Mikati will on Saturday make his first official trip to neighboring Syria since the fall of president Bashar Assad, his office told AFP.
Mikati’s office said Friday the trip came at the invitation of the country’s new de facto leader Ahmed Al-Sharaa during a phone call last week.
Syria imposed new restrictions on the entry of Lebanese citizens last week, two security sources have told AFP, following what the Lebanese army said was a border skirmish with unnamed armed Syrians.
Lebanese nationals had previously been allowed into Syria without a visa, using just their passport or ID card.
Lebanon’s eastern border is porous and known for smuggling.
Lebanese Shiite group Hezbollah supported Assad with fighters during Syria’s civil war.
But the Iran-backed movement has been weakened after a war with Israel killed its long-time leader and Islamist-led rebels seized Damascus last month.
Lebanese lawmakers elected the country’s army chief Joseph Aoun as president on Thursday, ending a vacancy of more than two years that critics blamed on Hezbollah.
For three decades under the Assad clan, Syria was the dominant power in Lebanon after intervening in its 1975-1990 civil war.
Syria eventually withdrew its troops in 2005 under international pressure after the assassination of Lebanese ex-prime minister Rafic Hariri.


UN says 3 million Sudan children facing acute malnutrition

Updated 10 January 2025
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UN says 3 million Sudan children facing acute malnutrition

  • Famine has already gripped five areas across Sudan, according to a report last month
  • Sudan has endured 20 months of war between the army and the paramilitary forces

PORT SUDAN, Sudan: An estimated 3.2 million children under the age of five are expected to face acute malnutrition this year in war-torn Sudan, according to the United Nations Children’s Fund (UNICEF).
“Of this number, around 772,000 children are expected to suffer from severe acute malnutrition,” Eva Hinds, UNICEF Sudan’s Head of Advocacy and Communication, told AFP late on Thursday.
Famine has already gripped five areas across Sudan, according to a report last month by the Integrated Food Security Phase Classification (IPC), a UN-backed assessment.
Sudan has endured 20 months of war between the army and the paramilitary Rapid Support Forces (RSF), killing tens of thousands and, according to the United Nations, uprooting 12 million in the world’s largest displacement crisis.
Confirming to AFP that 3.2 million children are currently expected to face acute malnutrition, Hinds said “the number of severely malnourished children increased from an estimated 730,000 in 2024 to over 770,000 in 2025.”
The IPC expects famine to expand to five more parts of Sudan’s western Darfur region by May — a vast area that has seen some of the conflict’s worst violence. A further 17 areas in western and central Sudan are also at risk of famine, it said.
“Without immediate, unhindered humanitarian access facilitating a significant scale-up of a multisectoral response, malnutrition is likely to increase in these areas,” Hinds warned.
Sudan’s army-aligned government strongly rejected the IPC findings, while aid agencies complain that access is blocked by bureaucratic hurdles and ongoing violence.
In October, experts appointed by the United Nations Human Rights Council accused both sides of using “starvation tactics.”
On Tuesday the United States determined that the RSF had “committed genocide” and imposed sanctions on the paramilitary group’s leader.
Across the country, more than 24.6 million people — around half the population — face “high levels of acute food insecurity,” according to IPC, which said: “Only a ceasefire can reduce the risk of famine spreading further.”


Turkiye says France must take back its militants from Syria

Updated 10 January 2025
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Turkiye says France must take back its militants from Syria

  • Ankara is threatening military action against Kurdish fighters in the northeast
  • Turkiye considers the Kurdish-led Syrian Democratic Forces as linked to its domestic nemesis

ISTANBUL: France must take back its militant nationals from Syria, Turkiye’s top diplomat said Friday, insisting Washington was its only interlocutor for developments in the northeast where Ankara is threatening military action against Kurdish fighters.
Foreign Minister Hakan Fidan insisted Turkiye’s only aim was to ensure “stability” in Syria after the toppling of strongman Bashar Assad.
In its sights are the Kurdish-led Syrian Democratic Forces (SDF) which have been working with the United States for the past decade to fight Daesh group militants.
Turkiye considers the group as linked to its domestic nemesis, the Kurdistan Workers Party (PKK).
The PKK has waged a decades-long insurgency in Turkiye and is considered a terror organization by both Turkiye and the US.
The US is currently leading talks to head off a Turkish offensive in the area.
“The US is our only counterpart... Frankly we don’t take into account countries that try to advance their own interests in Syria by hiding behind US power,” he said.
His remarks were widely understood to be a reference to France, which is part of an international coalition to prevent a militant resurgence in the area.
Asked about the possibility of a French-US troop deployment in northeast Syria, he said France’s main concern should be to take back its nationals who have been jailed there in connection with militant activity.
“If France had anything to do, it should take its own citizens, bring them to its own prisons and judge them,” he said.