Meet the Saudi social media star and author who’s battling a rare skin condition

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Abrar Al-Othman was born with a rare skin condition but persevered against the challenges to become an inspiring voice in Saudi society. (Instagram/abrar_alothman)
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Abrar Al-Othman is a Saudi female author who has Epidermolysis Bullosa (EB), a rare condition that causes fragile, blistering skin. The blisters may appear in response to a minor injury, even from heat, rubbing, or scratching. As the condition develops, large blisters can form on the skin. It may last a few years and sometimes causes serious problems. (Instagram/abrar_alothman)
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Abrar Al-Othman is a Saudi female author who has Epidermolysis Bullosa (EB), a rare condition that causes fragile, blistering skin. The blisters may appear in response to a minor injury, even from heat, rubbing, or scratching. As the condition develops, large blisters can form on the skin. It may last a few years and sometimes causes serious problems. (Instagram/abrar_alothman)
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Abrar Al-Othman is a Saudi female author who has Epidermolysis Bullosa (EB), a rare condition that causes fragile, blistering skin. The blisters may appear in response to a minor injury, even from heat, rubbing, or scratching. As the condition develops, large blisters can form on the skin. It may last a few years and sometimes causes serious problems. (Instagram/abrar_alothman)
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Updated 31 July 2023
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Meet the Saudi social media star and author who’s battling a rare skin condition

  • Abrar Al-Othman told Arab News: “My condition had a significant impact on me throughout many stages of my life, both because of its uncomfortable symptoms and because of how people looked at me and how I viewed society”

RIYADH: Abrar Al-Othman is a young Saudi woman with a challenging and rare skin condition, but it hasn’t deterred her from thinking positively, becoming an author of three books, and inspiring and helping others.

Since birth, Al-Othman has been dealing with the symptoms of Epidermolysis bullosa, a rare condition that causes skin to blister easily in response to a minor injury, or heat, rubbing or scratching. As the condition develops, large blisters can form on the skin. It may last a few years and can cause serious problems.

No one else in her family suffers from the genetic condition, and it has been a great challenge for Al-Othman. She told Arab News: “My condition had a significant impact on me throughout many stages of my life, both because of its uncomfortable symptoms and because of how people looked at me and how I viewed society.”




‘There is One Soul Between Us’ by Al-Othman, published in 2021. (Instagram/abrar_alothman)

Living with EB has caused her to face some harsh times. When she was ten, a bicycle accident resulted in a head injury that caused her to lose her hair permanently. She began wearing wigs at a young age.

Despite this, she has maintained a positive outlook on life and with the support of her family has been able to accept the challenges that come with her condition.

Armed with a contagious smile and optimistic attitude, Al-Othman took to social media as a platform to spread positivity and has written three books. In 2016, she wrote “There is Life in Every Heart,” which is “a variety of thoughts that I wrote years ago and compiled in it.”

HIGHLIGHTS

• Since birth, Abrar Al-Othman has been dealing with the symptoms of Epidermolysis bullosa, a rare condition that causes skin to blister easily.

• She is the author of three books including her debut ‘There is Life in Every Heart,’ published in 2016.

• Al-Othman is a social media star with over 81,000 followers on Instagram and 100+ million views on TikTok.

She began sharing her work on Twitter in 2018 and received many encouraging comments from users, but for a while she preferred to remain anonymous.

Al-Othman continued: “After I published my first book, I was advised by someone to write a book about my condition, and I hesitated because I loved living behind the screen with no one knowing what I looked like, but I decided to take this brave step.”




‘EB: My Other Half’ by Abrar Al-Othman, published in 2019. (Instagram/abrar_alothman)

In 2019, Al-Othman wrote her second book, “EB: My Other Half.” In this memoir-style work, she talked about “my story with illness since childhood, how I lived with it, some situations I went through … and among its pages are thoughts related to each stage.”

She was struck by readers’ comments and their outpouring of love, which led her to reveal her identity online. Having braved public scrutiny, Al-Othman began to appear in TV interviews, and as a result her life changed. She gained more than 81,000 followers on Instagram as well as the interest of prominent TV personalities.

Explaining the concept behind her third book, “There is One Soul Between Us,” which was published in 2021, she said: “(It) explores human emotions from my point of view. After each emotion, there is an empty page and a question concerning that emotion, and the reader is invited to express their perspective.”

I was advised by someone to write a book about my condition, and I hesitated because I loved living behind the screen with no one knowing what I looked like, but I decided to take this brave step.

Abrar Al-Othman, Saudi writer

She participated as an author in the Jeddah Book Fair where she met her readers and was able to connect more deeply with the community through her work. (NOTE: We’ll add the year this occurred when it’s clear, waiting for reporter’s feedback.)

Al-Othman’s journey has been anything but simple; she has had to deal with a lot of hardship, bullying, and has seen the dark and ugly side of society.

She recalled some of the positive experiences she had in school: “My friends at school helped open the water bottle or sharpen my pencil.”

Her friends would also help her do a variety of tasks, from carrying her backpack to helping her walk up the stairs.  

However, there were some really difficult experiences. “But I had really embarrassing moments. While taking a test, the pencil used to cut my skin and I bled on the paper so some of the teachers used to write for me.”

Al-Othman explained that sometimes she was embarrassed to eat at school because it would hurt her throat and so she would only drink water.

Things became more difficult for Al-Othman after secondary school; she became the target of bullies and other students would avoid sitting next to her due to her condition.

Speaking about the isolation this created, she said: “I was bullied to the point that I didn’t go to school for many days and when I was in college, I had no friends.”

Now, after enduring hardships, Al-Othman has become a beacon for others. She refers to herself as the “EB butterfly,” and has established a group for mothers of children with the same disease, to whom she offers a wealth of guidance.

She explained: “Every mother supports the other with advice on how to care for the child and (shares) experiences, whether in hospitals or treatments, and each one in accordance with their personal knowledge of the disease. A dermatologist is also present.”

 

 

Decoder

What is Epidermolysis bullosa?

It is a rare condition that causes the skin to blister easily in response to a minor injury, or heat, rubbing or scratching. It could last for years and can cause serious problems. Young Saudi woman Abrar Al-Othman was unfortunate to suffer from this condition since childhood, but it hasn’t deterred her from thinking positively, becoming an author of three books, and inspiring and helping others.


KSrelief distributes shelter kits in Afghanistan and Somalia

The initiative is part of the Kingdom’s ongoing humanitarian and relief efforts conducted through KSrelief. (SPA)
Updated 18 November 2024
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KSrelief distributes shelter kits in Afghanistan and Somalia

RIYADH: Hundreds of shelter kits have been distributed to people in Afghanistan and Somalia by Saudi aid agency KSrelief, reported the Saudi Press Agency.

Over the weekend, 200 kits were handed out as part of a project to help Afghan returnees from Pakistan and those affected by floods.

The project will provide 4,882 in total containing tents, blankets, plastic mattresses and other essential supplies to almost 30,000 people in need across 13 Afghan provinces.

In Somalia, 1,000 shelter kits, 1,000 clothing parcels, and 80 tents were given to displaced people in the Banadir region, benefitting 6,000 people.


KSrelief distributes aid to most needy in Lebanon, Chad and Syria

The aid is part of the ongoing assistance provided by KSrelief to some of the world’s most in need. (SPA)
Updated 18 November 2024
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KSrelief distributes aid to most needy in Lebanon, Chad and Syria

RIYADH: Saudi aid agency KSrelief has delivered more aid to those most in need in Lebanon, Chad and Syria, reported the Saudi Press Agency.

In Chari-Baguirmi, Chad, the agency delivered 1,600 food parcels that benefitted 9,600 people. A further 333 food aid parcels and 333 hygiene kits were distributed in the Idlib region of Syria to help 1,998 individuals from 333 families who were affected by last year’s devastating earthquake.

And in Lebanon, winter clothing vouchers were given to 300 orphans and people with special needs in Akkar governorate. These will help them buy clothing for the forthcoming winter.


Saudi defense minister meets with Chinese envoy to Kingdom

Updated 17 November 2024
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Saudi defense minister meets with Chinese envoy to Kingdom

  • Session attended by several high-ranking officials from both sides

RIYADH: Saudi Minister of Defense Prince Khalid bin Salman met with Chinese ambassador to the Kingdom Chang Hua on Sunday.

The meeting focused on reviewing the strong relations between the two nations and discussing various issues of mutual interest, Saudi Press Agency reported.

The session was attended by several high-ranking officials from both sides, SPA added.


King Salman approves hosting of 1,000 Umrah pilgrims from 66 countries

The Kaaba can be seen at the Grand Mosque in Makkah. (@AlharamainSA)
Updated 17 November 2024
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King Salman approves hosting of 1,000 Umrah pilgrims from 66 countries

  • Pilgrims will be hosted in four groups during the current Islamic year which ends in the final week of June 2025
  • Minister said the hosting of the pilgrims is an extension of the great care that Saudi leadership takes to serve Islam and Muslims

RIYADH: Saudi Arabia’s King Salman has approved the hosting of 1,000 pilgrims from 66 countries to perform Umrah as part of the Custodian of the Two Holy Mosques Programme for Hajj, Umrah, and Visit.

The pilgrims will be hosted in four groups during the current Islamic year which ends in the final week of June 2025.

The Minister of Islamic Affairs, Call, and Guidance and general supervisor of the Hajj and Umrah program Sheikh Abdullatif bin Abdulaziz Al-Sheikh thanked the Saudi leadership for enabling Muslims from different countries of the world to perform the minor pilgrimage with ease and peace of mind.

The minister said the hosting of the pilgrims is an extension of the great care that the leadership takes to serve Islam and Muslims.

He added it would strengthen the bonds of brotherhood among Muslims in various parts of the world and develop fruitful communication between scholars and influential figures who are hosted by the program.

The program has benefitted people from more than 140 countries since it was launched, the minister said.


Old school, new love: Analog tech captures hearts in Saudi Arabia

Updated 17 November 2024
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Old school, new love: Analog tech captures hearts in Saudi Arabia

  • Community bound by love of old gadgets that help enrich the present

RIYADH: In an era marked by digital convenience, analog technology is steadily making a comeback, with everything from vinyl records to film cameras experiencing a renaissance around the Kingdom.

Driven by a blend of nostalgia, artistry, and an appreciation for the tactile, this resurgence reflects a deeper cultural shift toward mindfulness and intentionality.

Arab News spoke to enthusiasts and entrepreneurs about the beauty, challenges, and personal connections that analog offers over its digital counterparts.

The resurgence of analog formats is a reminder that technology can be more than just a tool. (AN photo by Waad Hussain)

For music lovers, vinyl offers an experience that is impossible to replicate digitally. Fawaz Al-Sulaim, owner of Bohemia Records, said: “Experiencing music through vinyl or cassette brings you closer to it, like you’re there with the artists in the studio. You go through every song on the album as intended.”

Vinyl’s allure lies not just in its sound but also in its tangible presence. Holding a vinyl record offers a sense of ownership often missing in digital music, where ownership is more of a fleeting license.

Al-Sulaim said: “Analog represents physical media coming back — not just in a technical sense but as something people can hold on to.”

HIGHLIGHTS

• As Saudi Arabia invests in art, culture, and heritage, there is hope that analog’s value will continue to be recognized and supported.

• With the rise in interest, local communities and businesses are emerging to cater to this renewed passion for analog.

This revival is not limited to vinyl. Bohemia Records has seen an increase in CD sales, suggesting that physical formats resonate with people’s desire to own and cherish music collections.

The appeal of analog does not stop at music. In photography, the return to film presents a refreshing contrast to digital’s immediacy.

Film rolls ready for development at Haitham Studio Film Lab, where each roll holds captured memories and stories from Saudi photographers. (Photo by Abdulrahman Al-Osaimi)

Haitham Al-Sharif, founder of Haitham Studio Film Lab in Riyadh, spoke to Arab News about film photography’s unique character, saying: “Film requires patience, thought, and a connection with the moment. You’re fully present, considering every exposure.”

Al-Sharif, who began his film processing journey at home, has seen a surge in Saudi interest, with his studio now serving thousands across the Gulf region.

Haitham Studio’s clients include people from seasoned photographers to students experimenting with their parents’ vintage cameras.

An eclectic display of analog nostalgia and rock memorabilia, featuring classic vinyl records, retro audio equipment, and books on music icons—capturing the spirit of vintage and punk culture. (AN photo by Waad Hussain)

He said: “People come in for graduations, weddings, and even casual shots with disposable film cameras. Each frame has meaning, and the photographer remembers every shot.”

Running a film lab, however, is not without challenges. “We rely on older machines, specialized chemicals, and skilled technicians, which aren’t always easy to source locally,” Al-Sharif explained, adding that the support of Saudi Arabia’s growing art and tourism sectors could enhance this particular industry’s growth.

For retro tech enthusiasts like Zain Al-Mansour, the appeal goes beyond functionality. He said: “Listening to music on vinyl or snapping pictures with a vintage camera offers a joy that’s similar to making espresso — you savor the process as much as the end result.”

Film negatives hang to dry at Haitham Studio, reflecting the lab’s dedication to preserving the authenticity and art of analog photography. (Photo by Abdulrahman Al-Osaimi)

With an affinity for devices that evoke memories, Al-Mansour recently acquired a first-generation Tamagotchi, to help rediscover the simplicity and wonder of childhood technology.

Analog devices engage users on a personal level, prompting a more deliberate interaction than today’s instant gratification.

Al-Mansour said: “Retro tech is fascinating because it takes you back to a simpler time. The aesthetics of these devices, the physicality, and even the sounds they make add to their charm.”

A film negative passes through the scanning machine at Haitham Studio, bridging the analog and digital worlds to bring treasured moments to life. (Photo by Abdulrahman Al-Osaimi)

For others, analog represents a form of self-expression. Bashayer Al-Bloushi sees a unique beauty in analog’s imperfections, which bring out details often missed in digital formats.

“Film photography forces you to capture moments with intention. There’s no instant review, so you’re careful about each frame,” she said.

For Al-Bloushi, analog provides a richer experience that digital cannot offer, allowing for a deeper connection to each captured moment.

A retro cassette collection at Bohemia Records, showcasing a variety of genres and rare finds that capture the essence of analog music. (Photo by Fawaz Al-Sulaim)

Saja Al-Zahrani spoke about how analog media lets people embrace a slower, more mindful approach.

Al-Zahrani said: “There’s a warmth in vinyl’s crackle or film’s grain that digital can’t match.

“With analog, people reconnect with something real, something authentic.”

This tactile experience of using film or vinyl requires more focus, turning each interaction into a rewarding moment.

The value of analog media extends beyond nostalgia for Ebtsam Al-Dossary. Having grown up with film cameras, she sees them as reliable memory-keepers.

She said: “A camera doesn’t just store images; it keeps your memories safe. Digital files can vanish, but a physical photo endures.”

For Al-Dossary, the resurgence of analog formats is not just a trend; it’s a meaningful way to capture and remember moments more authentically.

As digital convenience reigns, this analog revival may underscore a collective yearning for experiences that slow us down, engage our senses, and encourage a mindful appreciation of art, music, and memories.

Whether it is the crackle of a vinyl record, the anticipation of developing a roll of film, or the tactile joy of a retro gadget, analog’s comeback offers a refreshing alternative to the fast-paced digital world.

In today’s digital landscape, the resurgence of analog offers a bridge between past and present, inviting us to reconnect with timeless traditions and meaningful experiences.

For enthusiasts across Saudi Arabia, this revival is about more than simply reverting to older technology — it is about rediscovering a different kind of connection, one in which every sound, image, and moment is fully appreciated.

Analog’s revival is redefining how Saudi society interacts with technology, pushing back against the trend of disposability and transient media. Each record played, photo developed, or gadget cherished represents a conscious choice to engage deeply with the experience.

Analog enthusiasts find joy in the imperfections, the weight of physical media, and the permanence these formats offer — qualities that digital often lacks.

With the rise in interest, local communities and businesses are emerging to cater to this renewed passion for analog. Haitham Studio and Bohemia Records are not just stores but spaces for Saudi artists, photographers, and music lovers to connect and share their passions. These communities thrive on a shared understanding of the value in slowing down and appreciating the process, rather than just the result.

In Riyadh, Al-Sharif has seen the effect firsthand. “We see customers coming back weekly, sometimes with friends, eager to develop their latest film rolls or browse the latest records,” he said. This sense of community is not just about shared interests; it is about shared values.

While the digital world offers unprecedented convenience and accessibility, analog serves a different purpose. Al-Sharif believes that both can coexist harmoniously. “Digital is essential for instant documentation, but analog is about timeless experiences,” he said.

Al-Zahrani, too, emphasizes that analog does not negate the value of digital but rather offers an alternative that complements it. “Both formats have their place, but analog asks something of you: it asks you to be present, to commit to the moment,” she said.

As Saudi Arabia invests in art, culture, and heritage, there is hope that analog’s value will continue to be recognized and supported. Whether through dedicated spaces like Haitham Studio or local events celebrating vintage tech, these efforts help sustain a trend that is not only about looking back but also about enriching the present.

The resurgence of analog formats is a reminder that technology can be more than just a tool. It can be an experience, a memory, and a form of art.